You Don't Look Sick!: Living Well with Invisible Chronic Illness

You Don t Look Sick Living Well with Invisible Chronic Illness Coming to terms with this reality was a lot like accepting the death of a loved one You Don t LOOK Sick Living Well with Invisible Chronic Illness chronicles a patient s true life accounts and her phy
  • Title: You Don't Look Sick!: Living Well with Invisible Chronic Illness
  • Author: Joy H. Selak Steven S. Overman
  • ISBN: 9781935303
  • Page: 412
  • Format: Paperback
  • You Don't Look Sick!: Living Well with Invisible Chronic Illness
    Coming to terms with this reality was a lot like accepting the death of a loved one You Don t LOOK Sick Living Well with Invisible Chronic Illness chronicles a patient s true life accounts and her physician s compassionate commentary as they take a journey through the three stages of chronic illness Getting Sick, Being Sick, and Living Well This resource helps you Coming to terms with this reality was a lot like accepting the death of a loved one You Don t LOOK Sick Living Well with Invisible Chronic Illness chronicles a patient s true life accounts and her physician s compassionate commentary as they take a journey through the three stages of chronic illness Getting Sick, Being Sick, and Living Well This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones.From the book I ve learned that having a chronic illness is not a prison sentence It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones You Don t LOOK Sick addresses practical aspects of chronic illness, such as hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for changeIn You Don t LOOK Sick Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey You will also find suggested reading materials for learning to live well, medical Internet resources, illness specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited From the authors I ve learned that having a chronic illness is not a prison sentence It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones Joy H Selak My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity My job is than giving answers I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications Dr Steven Overman The authors are experienced public speakers If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at JoyWrites austin.rr.
    You Don't Look Sick!: Living Well with Invisible Chronic Illness By Joy H. Selak Steven S. Overman,
    • READ BOOK ☆ You Don't Look Sick!: Living Well with Invisible Chronic Illness - by Joy H. Selak Steven S. Overman
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    About " Joy H. Selak Steven S. Overman "

  • Joy H. Selak Steven S. Overman

    You Don t LOOK Sick Living Well with Invisible Chronic Illness, co authored with her physician was first published in 2005 A fully revised second edition was published by Demos Health in December 2012 The authors take the reader on a journey through the 4 stages of chronic illness, Getting Sick, Being Sick, Grief and Acceptance and Living Well They believe it is possible to live well, even if you cannot get well and are passionate advocates for compassionate, comprehensive healthcare.Joy was raised in San Antonio, TX, attended Arizona State University for 14 years, earning 4 degrees She taught in the English Department at ASU for 7 years, then left academics to become a stockbroker After becoming ill, Joy turned to writing Joy is board president of ZACH Theatre in Austin, TX and through ZACH and MindPOP she advocates for the arts and arts education across the curriculum Joy was a founder and consultant for A Legacy of Giving, an organization that teaches children to be philanthropists through their school curriculum.

  • 392 Comments

  • You don t look sick Although our stories may vary, this is the one phrase that all of us living with Chronic Fatigue Syndrome, Fibromyalgia, and other invisible chronic illnesses have experienced, dread, and fear the most It s hard enough to live in pain, fight through fibrofog, and deal with lost independence but this simply utterance makes us feel like we have to explain ourselves and frankly the explanation is never quite good enough We leave the conversation with a feeling that getting sick [...]


  • Dear Group,This book is one of the best books I ve read on so called hidden illnesses What I mean by this is that I, myself have a hidden illness where, unless you know me very well I look totally healthy.I m quite pleased that I don t have any diseases that would scare little children, but then again, it s quite distressing to hear that people who don t know a thing about you, except that someone has told them you are ill, saying things like You look really good When what they actually want to [...]


  • I have read many, many books on living with a chronic illness Every one has its own promises do what I say and you will be healed Then, once you try the magic recipe that they suggest and you are not healed, you chalk it up to one failure on your part This is the last thing that anyone with a chronic illness needs guilt This book is completely different It is written by Joy Selak, who gives her views and experiences as a patient and sufferer of chronic illnesses, and by Dr Steven Overman, MD w [...]


  • Having struggled with an invisible illness for several years now, which completely took away my original life, I took to this book like a bee to honey At the time I found this book, I knew no one else who had the struggles I had and had lost all of my friends It was very reassuring that I was not the only one, and that I had not lost my mind Since then I have be able to be hooked in to many others with ME CFS FM, including a very understanding and supportive doctor However I still hear the But y [...]


  • I read this book and felt for a moment the relief of recognizing your own life in anothers story a release of guilt both long overdue I was so happy to read this and to feel hopeful that i have already made an appointment to see Dr Overman the Rheumatologist who co authored it


  • The advice is very sensible and the story inspiring I can do something to make myself feel better Not being at 100% does not mean a person flunks life altogether


  • I wanted so much to like this book and I did enjoy the parts that were written by Steven Overman, MD but I found the writing by Joy Selak to be lacking in real self insight Her illness story comes across as entitled and rather infuriating I couldn t help but be reminded of all the hard working, kind, and desperately poor women I ve had as patients who struggled with similar and worse autoimmune illnesses They barely had access to primary health care, much less high level specialty medical care a [...]


  • I am right at the point of trying to accept all the things that I can t do now that I am disabled and I don t think that I am ready for this book or really anyone trying to give me the positive side of the sh t hole I feel like I am in I need time to grieve and be an angry redacted by commenter for a while longer I might come back to this book in the future and what I read seemed helpful for some Just not in the head space for it.


  • Note I read the 2nd edition of this book I chose to read this book because I have loved ones who live with chronic illness every day I have also had to make a few modifications in my life as I learned to live with Endometriosis Thankfully in my own situation, I have figured out how to best manage it so it doesn t interfere with my daily life However, I felt that for the benefit of others, this book could provide me with further insight.In their book, You Don t Look Sick second edition , Joy and [...]


  • I think this is a good book on living with chronic illness for a lot of chronically ill people This book was written by Joy and her rheumatologist Dr Overman Joy s chronic illnesses started in the 1980 s steadily worsening over time Joy has multiple chronic illnesses like most of us Joy and Dr Overman came up with the Four Phases of Invisible Chronic Illness I found that most of them overlapped in one way or another Good advice was given throughout the book a lot of it useful for everyone that i [...]


  • I read this for my chronic illness group and the co author, the doctor, actually met with us to hear feedback I think this book is important in how it illustrates the relationship between a patient, with a chronic condition that is difficult to diagnose treat, and her physician the kind of physician everyone in this situation would HOPE to have From a patient s perspective it was helpful to hear the doctor s point of view It has helped communication with my own doctor Everyone in my group had th [...]


  • Recommend to anyone living with a chronic illness The patient and the doctor wrote the book together There is a good bit of information, resources, advice, etc available in this book Real life insurance woes that shows readers that perseverance pays off in the end Dealing with ignorance can make you look silly but tomorrow is another day And sometimes you gotta bite the bullet or swallow the pill nag go to your h.s reunion fatigue or no fatigue I had a few writerly issues with the book but overa [...]


  • Well written and easy to read, this is a book about coping with a chronic health condition In alternating sections Joy Selak, a patient, and Steven Overman, a physician, discuss the Four Phases of Invisible Chronic Illness Getting Sick, Being Sick, Grief and Acceptance, and Living Well.I have lived with invisible chronic illness for 11 years I wish I would have had this book at the start of my journey I have read many books about my health condition, many of which promise a miracle cure with an [...]


  • This book gave me the solidarity I so desperately needed Even though I have great family support, I have been feeling alone with my struggles with my illness, feeling absolute despair at the impact on my life I needed to feel like I had an ally who got what I was going through and I found it in this book.I have felt the yucky judgement and dismissal from the you don t look sick brigade, who appear to assume that I am weak or indulgent I have had a million quack remedies recommended by well meani [...]


  • This was interesting enough and very short, barely 125 pages additional resources I got vastly out of Joy s memoir like chapters than I did Dr Overman s, but that s to be expected in terms of what I was looking for, and YMMV.I love the title, which is really what sold me on this book 2 3 memoir, 1 6 overview of chronic illness from a medical perspective, 1 6 rant against how the American insurance and medical systems deal with chronic illness Nothing too concrete to offer, but Joy does have a f [...]


  • This is a useful book for people at almost any stage of coping with chronic illness It is light, has some good ideas, and the partnership with the two writers, one with chronic illness, one a physician, works well Does not espouse one type of modality or mindset over another a relief and is respectful of the reader.


  • As someone who suffers from a chronic illness, I found solace and comfort from this book I understand this message and I know so many others do as well Selak dares to reach out into the world, speak her truth, and give others, like me, hope and a sense that we are not alone.


  • This book was interesting because it compared the experiences of a patient with her doctor It covered the impact of chronic illness both from a medical scientific and an emotional social perspective and I found this really useful.


  • I would recommend this not just to people with both invisible and rare chronic illnesses, but also to people who have a close family member friend with chronic illness Even though my problems are visible many things were very relatable.


  • The author s not preachy about it but the book opens with a prayer and makes frequent reference to spirituality Not my thing Also, even if it was tongue in cheek, her advice to avoid any medicine that will make you fat was unnecessary at best.


  • Encouraging, and practical The book was co written by a doctor and his patient The doctor was empathetic I felt like the patient could have been me in so many ways The book provides hope.


  • Brilliant book It reflected how I was feeling and what I believed when I was dealing with my chronic illness I would recommend this book to anyone.



  • this book resonates with my own struggles I recommended this on a chronic pain sufferers Facebook page as well This should be mandatory reading at the point of diagnosis


  • Excellent book from a patient s viewpoint on dealing with a chronic illness without any outward appearances I deal with this issue in dealing with chronic lyme disease.




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